How can we understand unmet needs in a rare disease to inform product innovation?


The challenge

Identify which innovative product formats to invest in for a rare disease based on robust data and insight from a limited pool of patients.


What we did

Online community across 5 days to explore how treatments fit into patients lives.

Follow-up one-on-one interviews to dig deeper.

Voice emotion analysis to identify attachment to treatments.


The outcome

We delivered a clear recommendation of which product innovations to launch and how to refine them.

We developed a value proposition for the treatments based on patient unmet needs.